Thank you!

Thank you, everyone, for making Moebius Syndrome Awareness day a big success, and for spreading awareness about Ozzie!!

As i watched my facebook and instagram feed turn purple, i realized how special and amazing it is that the collective communities are coming together for all the moebians.  I follow one girl on instagram, her name is Zayne, and she has Moebius syndrome – and seeing the pictures of her middle school dressed in purple, all her friends wearing shirts for her…. it almost made me cry to know that when Ozzie is ready for school that he can have a special day like that too.  How people around him will know that he’s really great, and that he just looks a little different.  It also made me think how fortunate we are to have things like The Many Faces of Moebius website and facebook page, that the Moebius Syndrome Foundation exists, that we can connect via the internet and conferences.

I’m also struck by how Ozzie’s experience in school will be different from, say, those with Moebius Syndrome who went through the school system 20 years ago.

I’ve collected photos from all those people who wore purple for us on Friday! you can see it here!

DSC_0017We love you!


2 thoughts on “Thank you!

  1. All the support that was shown for me and everyone else on MSAD was nothing short of amazing! I feel so grateful to be part of the Moebius community. I really look forward to seeing you guys at the Conference in July!!

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s