This is the story of our family – Mama (Laura), Daddy (Brad), big brother Cedric and Baby Ozzie – who has Moebius Syndrome; a congenital nerve disorder affecting cranial VI and VII nerves controlling the lateral movement of his face.
Moebius Syndrome effects 2-20 people in a million. That’s right, a million.
We live in Saskatoon, Saskatchewan – where the population of the entire province is roughly one million people.
This blog is to keep our families and friends up to date on Ozzie’s progress, as well as to keep you all informed of our fundraising efforts as we plan to attend the 2014 Moebius Syndrome conference in Washington, DC.